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Testing Knowledge : Toward an Ecology of Diagnosis, Preceded by the Dingdingdong Manifesto
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Year: 2021 Publisher: Brooklyn, NY punctum books

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"This volume presents the collective adventure of Dingdingdong, the Institute for the Co-production of Knowledge about Huntington’s Disease, founded in 2012 between Paris and Brussels.Katrin Solhdju’s Testing Knowledge: Toward an Ecology of Diagnosis pursues the question of taming the violence of the new species of medical foreknowledge represented by genetic testing. Adopting historical and epistemological perspectives on diagnostic situations, including observations from anthropological field research, speculative storytelling, and ancient oracles, Testing Knowledge proposes a new ecology of predictive diagnostic gestures, which potentially concern us all.Testing Knowledge is preceded by the Dingdingdong collective’s Manifesto (2013), which tells the story of the young Alice Rivières, who in 2006 took the presymptomatic, genetic test, foretelling her that she will eventually develop Huntington’s. Her first-person account of the revelation of her test results, which she experienced as an act of poisoning or cursing, pulls the reader into the manifold ethical, psychological, and existential issues inherent to medical predictions.Testing Knowledge is also preceded by a foreword from Alice Wexler, author of Mapping Fate: A Memoir of Family, Risk, and Genetic Research, and is followed by an afterword by philosopher Isabelle Stengers."


Book
Testing Knowledge : Toward an Ecology of Diagnosis, Preceded by the Dingdingdong Manifesto
Authors: ---
Year: 2021 Publisher: Brooklyn, NY punctum books

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Abstract

"This volume presents the collective adventure of Dingdingdong, the Institute for the Co-production of Knowledge about Huntington’s Disease, founded in 2012 between Paris and Brussels.Katrin Solhdju’s Testing Knowledge: Toward an Ecology of Diagnosis pursues the question of taming the violence of the new species of medical foreknowledge represented by genetic testing. Adopting historical and epistemological perspectives on diagnostic situations, including observations from anthropological field research, speculative storytelling, and ancient oracles, Testing Knowledge proposes a new ecology of predictive diagnostic gestures, which potentially concern us all.Testing Knowledge is preceded by the Dingdingdong collective’s Manifesto (2013), which tells the story of the young Alice Rivières, who in 2006 took the presymptomatic, genetic test, foretelling her that she will eventually develop Huntington’s. Her first-person account of the revelation of her test results, which she experienced as an act of poisoning or cursing, pulls the reader into the manifold ethical, psychological, and existential issues inherent to medical predictions.Testing Knowledge is also preceded by a foreword from Alice Wexler, author of Mapping Fate: A Memoir of Family, Risk, and Genetic Research, and is followed by an afterword by philosopher Isabelle Stengers."


Book
Testing Knowledge : Toward an Ecology of Diagnosis, Preceded by the Dingdingdong Manifesto
Authors: ---
Year: 2021 Publisher: Brooklyn, NY punctum books

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Abstract

"This volume presents the collective adventure of Dingdingdong, the Institute for the Co-production of Knowledge about Huntington’s Disease, founded in 2012 between Paris and Brussels.Katrin Solhdju’s Testing Knowledge: Toward an Ecology of Diagnosis pursues the question of taming the violence of the new species of medical foreknowledge represented by genetic testing. Adopting historical and epistemological perspectives on diagnostic situations, including observations from anthropological field research, speculative storytelling, and ancient oracles, Testing Knowledge proposes a new ecology of predictive diagnostic gestures, which potentially concern us all.Testing Knowledge is preceded by the Dingdingdong collective’s Manifesto (2013), which tells the story of the young Alice Rivières, who in 2006 took the presymptomatic, genetic test, foretelling her that she will eventually develop Huntington’s. Her first-person account of the revelation of her test results, which she experienced as an act of poisoning or cursing, pulls the reader into the manifold ethical, psychological, and existential issues inherent to medical predictions.Testing Knowledge is also preceded by a foreword from Alice Wexler, author of Mapping Fate: A Memoir of Family, Risk, and Genetic Research, and is followed by an afterword by philosopher Isabelle Stengers."


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Praktijkboek patient empowerment voor zorgverstrekkers
Authors: --- --- ---
ISBN: 9782509041760 Year: 2022 Publisher: Brussel Politeia

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Patient Empowerment is geen vrijblijvend concept. Het heeft een zeer duidelijke betekenis én het vraagt om een specifiek gedrag van zorgvragers en zorgverstrekkers, in elk domein van de zorg. Dit zeer actuele praktijkboek richt zich tot zorgverstrekkers in de breedste betekenis van het woord (huisartsen, arts-specialisten, verpleegkundigen, paramedici …), maar ook tot de directies van zorgorganisaties (ziekenhuizen, centra voor GGZ, woonzorgcentra, revalidatiecentra …) en zelfs tot iedereen die in een zorgorganisatie werkzaam is. Dit praktijkboek ‘Patient Empowerment voor Zorgverstrekkers’ onderscheidt zich door zijn uiterst concrete inslag. Het concept Patient Empowerment wordt precies gedefinieerd en vervolgens omgezet in een groot aantal zeer concrete tips. Daaruit kan elke zorgverstrekker zelf kiezen welke tip voor welke zorgvrager in een specifieke situatie aangewezen is. Dé zorgverstrekker en dé zorgvrager bestaan immers niet. Het praktijkboek schrijft niet voor, het wil inspireren. Redacteurs Lynn De Pelsmaeker en Edgard Eeckman hebben de talrijke – soms kleine maar voor de zorgvrager vaak veelbetekenende – empowerende gedragselementen van zorgverstrekkers en zorgorganisaties gedistilleerd uit omvangrijke literatuur, uit focusgroepen en contacten met zorgvragers en uit gesprekken met zorgverstrekkers. Het doel is om tot een zorgvrager te komen die, als hij of zij dat wil, aan het stuur kan zitten van zijn eigen zorgproces. Daar is de zorgvrager bij gebaat, maar ook de zorgverstrekkers en de hele zorg.


Book
Patient Engagement in Health and Well-Being: Theoretical and Empirical Perspectives in Patient Centered Medicine
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Year: 2018 Publisher: Frontiers Media SA

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At present citizens are more aware of their health and care rights and more literate about their disease. Furthermore the continuous development of technological and bio-medical solutions are alimenting the expectation for longer and better life expectancy, even despite the diagnosis. Patients require to be higher involved in the decision making about their care and are willing to deeply entangle all the possible treatment options, their advantages, and their risks. In other terms, citizens today want to be treated not only as “client” but mainly as partners of the medical action and as co-authors of the success of their healthcare pathway. Due to this socio-psychological change in patients’ attitude, healthcare systems today are claimed to a deep revision of their practices and organizational models in order to become better responsive to patients’ expectation and more sustainable and effective in the management of their services. Patient participation and engagement in healthcare management, indeed, is today acknowledged by policy makers and healthcare experts as a valuable option to orient changes and actions of the healthcare systems. Several empirical studies have demonstrated the positive outcomes of a participatory care approach at the clinical, psychosocial, and economic levels. Patient Engagement, thus, appears today not only an ethical but also a pragmatic imperative for the innovation and the improvement of healthcare system. Moving from these premises, this e-book collects first research experiences, conceptual contribution and review of good practices in the area of Patient Engagement promotion. The e-book also discusses the relevance and the theoretical linkages between the concept of Patient Engagement and that one of Patient Centered Medicine.


Book
Patient Engagement in Health and Well-Being: Theoretical and Empirical Perspectives in Patient Centered Medicine
Authors: ---
Year: 2018 Publisher: Frontiers Media SA

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Abstract

At present citizens are more aware of their health and care rights and more literate about their disease. Furthermore the continuous development of technological and bio-medical solutions are alimenting the expectation for longer and better life expectancy, even despite the diagnosis. Patients require to be higher involved in the decision making about their care and are willing to deeply entangle all the possible treatment options, their advantages, and their risks. In other terms, citizens today want to be treated not only as “client” but mainly as partners of the medical action and as co-authors of the success of their healthcare pathway. Due to this socio-psychological change in patients’ attitude, healthcare systems today are claimed to a deep revision of their practices and organizational models in order to become better responsive to patients’ expectation and more sustainable and effective in the management of their services. Patient participation and engagement in healthcare management, indeed, is today acknowledged by policy makers and healthcare experts as a valuable option to orient changes and actions of the healthcare systems. Several empirical studies have demonstrated the positive outcomes of a participatory care approach at the clinical, psychosocial, and economic levels. Patient Engagement, thus, appears today not only an ethical but also a pragmatic imperative for the innovation and the improvement of healthcare system. Moving from these premises, this e-book collects first research experiences, conceptual contribution and review of good practices in the area of Patient Engagement promotion. The e-book also discusses the relevance and the theoretical linkages between the concept of Patient Engagement and that one of Patient Centered Medicine.


Book
Patient Engagement in Health and Well-Being: Theoretical and Empirical Perspectives in Patient Centered Medicine
Authors: ---
Year: 2018 Publisher: Frontiers Media SA

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Abstract

At present citizens are more aware of their health and care rights and more literate about their disease. Furthermore the continuous development of technological and bio-medical solutions are alimenting the expectation for longer and better life expectancy, even despite the diagnosis. Patients require to be higher involved in the decision making about their care and are willing to deeply entangle all the possible treatment options, their advantages, and their risks. In other terms, citizens today want to be treated not only as “client” but mainly as partners of the medical action and as co-authors of the success of their healthcare pathway. Due to this socio-psychological change in patients’ attitude, healthcare systems today are claimed to a deep revision of their practices and organizational models in order to become better responsive to patients’ expectation and more sustainable and effective in the management of their services. Patient participation and engagement in healthcare management, indeed, is today acknowledged by policy makers and healthcare experts as a valuable option to orient changes and actions of the healthcare systems. Several empirical studies have demonstrated the positive outcomes of a participatory care approach at the clinical, psychosocial, and economic levels. Patient Engagement, thus, appears today not only an ethical but also a pragmatic imperative for the innovation and the improvement of healthcare system. Moving from these premises, this e-book collects first research experiences, conceptual contribution and review of good practices in the area of Patient Engagement promotion. The e-book also discusses the relevance and the theoretical linkages between the concept of Patient Engagement and that one of Patient Centered Medicine.


Book
Balanceren tussen macht en onmacht : patient empowerment als grondslag voor gelijkwaardigheid in de relatie patiënt-arts
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ISBN: 9782509035257 Year: 2019 Publisher: Brussel Politeia

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Dit actueel boek is tegelijk het toegankelijk verslag van wetenschappelijke inzichten rond Patient Empowerment én een persoonlijk getint verhaal. Communicator, onderzoeker en auteur Edgard Eeckman baseert zijn betoog over de relatie tussen patiënt en arts zowel op wetenschappelijk onderzoek als op zijn eigen persoonlijke ervaring met de gezondheidszorg.Daarbij houdt hij steeds de mens voor ogen. De mens in de patiënt en in de zorgverlener. Hij bekijkt de macht in de relatie patiënt-arts vanuit een ongebruikelijke invalshoek. Op de achtergrond van de relatie sluimert afhankelijkheidsmacht: een macht die niet altijd zichtbaar is, maar wel grote invloed kan hebben op het gedrag van de patiënt. En op dat van de zorgverlener.Vanuit zijn ongebruikelijke visie op macht detecteert de auteur de concrete ingrediënten van Patient Empowerment en geeft hij aan wat het antwoord zou kunnen zijn op de bestaande asymmetrische machtsrelatie tussen patiënt en zorgverlener.Een warm beargumenteerd pleidooi voor een gelijkwaardige patiënt-zorgverlener relatie. Een verhaal dat tegelijk de toegankelijke analyse is van een wetenschappelijk onderzoek. Artsen, maar ook andere zorgverleners, zorgorganisaties en niet in het minst ook patiënten en patiëntenverenigingen vinden in dit boek talrijke nieuwe inzichten.https://www.politeia.be/nl/publicaties/180723-balanceren+tussen+macht+en+onmacht


Book
Organising care around patients : stories from the frontline of the NHS
Authors: ---
ISBN: 1526147440 1526147459 Year: 2021 Publisher: Manchester : Manchester University Press,

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Healthcare aims to be patient-centred but a large gap remains between the fine words and the reality. Care often feels designed for the convenience of the organisations that deliver it, and not enough around patients and their families, or even around the frontline staff who provide it. Why does this happen? What does it feel like? What can be done about it? This book stimulates reflection on these questions by listening closely to those at the frontline. It provides accounts from patients, carers and healthcare professionals who are patients about what it's like when services get it right, and wrong, from birth up to the end of life. Quite simply, we want to draw upon the power of storytelling - which is increasingly valued as a tool for learning - to help policymakers and practitioners to understand how to deliver better care. We also hope to enlighten the general reader about how they might go about navigating "the system" while it remains imperfect. There is a growing literature of first-person accounts from patients and from healthcare professionals. This book differs by providing a collection of narratives of experiences of the NHS in England to paint a rich and varied picture. Alongside these narratives we provide some international context, and an overview of the history of moves towards a more patient-centred approach to care. We present the theory and practice of storytelling in the context of healthcare. We also seek to help the reader to draw out the practical learning from the individual accounts.


Book
Occupational therapy in mental health : A vision for participation
Authors: --- ---
ISBN: 9780803659162 0803659164 Year: 2019 Publisher: Philadelphia, PA F.A. Davis Company

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A person-centered, recovery-oriented, and occupation-based approach to mental health across the lifespan. This revision of a well-loved text continues to embrace the confluence of person, environment, and occupation in mental health as its organizing theoretical model, emphasizing the lived experience of mental illness and recovery. Rely on this groundbreaking text to guide you through an evidence-based approach to helping clients with mental health disorders on their recovery journey by participating in meaningful occupations. Understand the recovery process for all areas of their lives-physical, emotional, spiritual, and mental-and know how to manage co-occurring conditions. Content has been updated to follow the most current DSM-5 information and best practices from the evidence. New chapters highlight changes in occupational therapy practice and settings, and additional assessment and intervention content strengthens the applicability to current practice. Uses the Person-Environment-Occupation (PEO) model as a framework to promote the full participation in the lives of individuals with mental illness and those struggling with psychosocial issues related to their disabilities. - Features first-person The Lived Experience, narratives that give voice to the experience of living with a mental illness - Incorporates Photo Voice features, a blend of photography and personal stories that enable individuals to record their visions and experiences to promote dialogue about important issues. - Addresses co-occurring conditions such as depression, stroke, substance abuse and spinal cord injury, and attention deficit disorder and learning disabilities. - Promotes best practices with Evidence-Based Practice boxes that synthesize significant research and implications for practice. - Offers extensive information on theory and evidence-based interventions - Employs active learning strategies to facilitate the application of knowledge, skills, and attitudes essential for mental health and psychosocial interventions. - Addresses occupational therapy in a variety of practice settings for individuals from all cultures across the life span. - Discusses non-diagnosis-based populations, such as the homeless, as well as the continuum of care from institution or hospital to the community.

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